The Life of Fibromyalgia Sufferer

I am a fibromyalgia warrior and so are you. Hope it can make people less guilty.

Do you remember when…. you could walk miles. Do you remember when…. you could lift your children up for a cuddle. Do you remember when…. you went crazy blitzing the house. Do you remember when…. you could cook for the 5000. Do you remember when…. you used to dance all night. Do you remember when…. you never had to change plans. Do you remember when…. you could go on a shopping spree.

Do you remember when… you didn’t need to rely on people. Do you remember when…. you were fit as a fiddle. Do you remember when…. you were pain free. Do you remember when…. you could remember things. Do you remember when…. you started getting pains. Do you remember when…. the doctor diagnosed you with fibromyalgia. Do you remember when…. you didn’t need to put medication into your system.

You then get an answer to why you were in excruciating pain. Eventually people start whispering he/she looks fine. You then get worse and can’t do what you used to be able to do from dancing the night away to actually needing to rely on people but also trying to accept that your Ill it ain’t going to last a week or a month or a year it’s there life. You then start to spend more time in your bed than what you would in the lounge. Your bedroom becomes your living space.

You spend nights either sleeping or awake tossing in agony and still people think your either being lazy or pretending your Ill or u can’t be bothered. You then start to lose some of your friends as you keep cancelling but still don’t understand what you are going threw. You feel your life slipping away in front of you and there is not one thing you could do. Your illness has changed the person you used to be.

My marriage fell apart for a number of reasons 1. being i was always in my dressing gown. 2. Letting myself go. I was then left with 4 kids on my own 1 being severely disabled. Then my oldest daughter Lauren moved back and moved in and helped and picked me of the floor numerous times when i just couldn’t do it anymore. She was the roof of the family she learned how to deal with her brother who is severely disabled. And her little sister who has separation anxiety. And also myself.

I felt so useless i felt like a useless mum, lauren reassured me i’m far from it when my kids need a hug i’m there when they need help with something i’m there i am always there. Lauren who is 19 baths ne washes my hair and always makes sure i’m comfortable when i’min pain shes there, i will never thank her enough for all her help and support. Shes not only my daughter shes also my best friend and vice versa. You don’t get alot of 19 year old out there who can do what she does day in day out. And no matter how hard it is she’s always got a smile on her face. I’m proud to call her my daughter.

My Illness has changed the person i used to be. Finally you try and accept it as much as u can even tho you don’t actually want to. You then find it more difficult to get around. You then start thinking how the hell am I going to get around…. you think about all sorts. I decided to go and look into an electric scooter. My daughter lauren came with me and we spoke about it, I get it in a fortnight’s time. I’m looking forward to it as I can go down town with my daughter is can race my kids and we can all laugh together.

My life is starting to properly come together after a few years it’s been bloody hard but I genuinely need to thank my daughter Lauren 19 and laurens boyfriend Sam who is brilliant as well and my other son jamie 13 who always asks if anything needs done i’ve got very good kids and there hearts are in the right place we all look after each other. My kids helped me when I had no one. I have accepted what it is just recently, I’ve met a wonderful man whom the kids get on with great. And makes me happy he has seen me on bad days he has seen me on good days. But most of all we are all just living day by day. I would like to dedicate this to lauren Jamie summer and ollie and Sam. Love you all xxx

Finally you try and accept it as much as u can even tho you don’t actually want to. You then see a thing on Facebook fibromyalgia group. Ask to join and there is your light some one to understand someone to giggle with someone that understands. You then accept it more and find it more difficult to get around. You then start thinking how the hell am I going to get around…. you think about all sorts.

This is my life story.Without this site I wouldn’t have anyone to chat to apart from my daughter and fiance. Thanks to this site I decided to go and look into an electric scooter. I get it in a fortnight’s time. I love you all because we are going threw the same thing and each one of us know what the pain is like it’s real pain. There ain’t no cure as yet but as long as we av each other and flappy hour then that’s one good thing Xxx. by Helen Gallacher.