Fibromyalgia : Surviving An Invisible Misery - FR Report

Over 5 million people affects by fibromyalgia in the U.S also the numbers are keep on increasing. There are numerous uncomfortable signs of Fibromyalgia. It is recognized as an unseen illness as people cannot see the way where people hurt from the disease. Usually, Fibromyalgia is a quite severe situation that the victims experience and its signs should be identified. So Fibromyalgia Resources(FR) have compiled a report on fibromyalgia and discuses different things related to fibromyalgia that everyone should be aware of.

What is Fibromyalgia?

Fibromyalgia’s name comes from “fibro” (the Latin term for fibrous tissue), “myo” (the Greek word for muscle) and “algia” (the Greek word for pain). According to the National Fibromyalgia Association, an estimated 3% to 6% of the world’s population suffers from the condition: about 450 million people, including at least 10 million in the United States.

Fibromyalgia is a bewildering and largely misunderstood disorder characterized by widespread pain and tenderness accompanied by fatigue, sleep, memory issues, and gastrointestinal concerns. Because the array of possible symptoms is so extensive (and there remains no clear consensus on how to diagnose the disorder), many feel lost as to what is affecting them and what to do about it.

The most important thing to remember is that fibromyalgia may be poorly understood, but it is very real. By becoming more aware of the signs and symptoms of the disorder, you can help your doctor help you identify fibromyalgia and access treatment that may greatly improve your quality of life.

Symptoms of fibromyalgia

Fibromyalgia symptoms are categorized into 15 categories.

1. General
2. Pain
3. Neurological
4. Equilibrium/Perception
5. Sleep
6. Eyes/Vision
7. Cognitive
8. Emotional
9. Gastrointestinal
10. Urogenital
11. Skin
12. Sensitivities
13. Cardiovascular (Heart)
14. Hair/Nails
15. Others

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General Symptoms

1. Activity level decreased to less than 50% of pre-illness activity level
2. Cold hands and feet (extremities)
3. Cough
4. Craving carbohydrates
5. Delayed reaction to physical activity or stressful events
6. Dryness of eyes and/or mouth
7. Edema
8. Family member(s) with Fibromyalgia
9. Fatigue, made worse by physical exertion or stress
10. Feeling cold often
11. Feeling hot often
12. Frequent sighing
13. Heart palpitations
14. Hoarseness
15. Hypoglycemia (blood sugar falls or low)
16. Increased thirst
17. Low blood pressure (below 110/70)
18. Low body temperature (below 97.6)
19. Low-grade fevers
20. Night sweats
21. Noisy joints – with or without pain
22. Poor circulation in hands/feet
23. Profuse sweating
24. Recurrent flu-like illness
25. Shortness of breath with little or no exertion
26. Severe nasal allergies (new or worsening allergies)
27. Sore throat
28. Subjective swelling of extremities – (feels swollen Bu can’t find anything)
29. Sweats
30. Symptoms worsened by air travel
31. Symptoms worsened by stress
32. Symptoms worsened by temperature changes
33. Tender or swollen lymph nodes, especially in neck and underarms
34. Tremor or trembling
35. Unexplained weight gain or loss

PAIN

36. Abdominal wall pain
37. Bad hip pain
38. Burning Nerve Pain
39. Chest pain
40. Collarbone pain
41. Diffuse swelling
42. Elbow pain
43. Exacerbated Plantar arch or heel pain
44. “Growing” pains that don’t go away once you are done growing
45. Headache – tension or migraine
46. Inflamed Rib Cartilage
47. Joint pain
48. Lumpy, tender breasts
49. Morning stiffness
50. Muscle pain
51. Muscle spasms
52. Muscle twitching
53. Muscle weakness
54. Pain that ranges from moderate to severe
55. Pain that moves around the body
56. Paralysis or severe weakness of an arm or leg
57. Restless Leg Syndrome
58. Rib Pain
59. Scalp Pain (like hair being pulled out)
60. Sciatica-like pain
61. Tender points or trigger points
62. TMJ syndrome
63. “Voodoo Doll” Poking Sensation in random places

Click Here to read the complete list of fibromyalgia symptoms

What does fibromyalgia feel like?

Fibromyalgia is a Constant pain that never goes that makes you feel like crying. Living with fibromyalgia is be like a Never ever being out of pain in some part of your body or your entire body is bruised. Almost like you’ve been sleeping on a hard floor and someone was kicking you all over. I feel Like I’m sick with a different ailment every day.

Fibromyalgia is a great incentive to live for each day. If you wake up and can move, make the most of it. If you wake up and can’t move, then don’t. Get some rest, read a book, watch a movie. It might not be what you want, but it’s what you have to do for that day. Tomorrow is a new day and may well be different to yesterday. Be thankful that you have tomorrow because many people don’t. I know it’s difficult to feel that way when you’re in constant agony but there is always something good to in each day.

No words to describe how awful it is it’s a living hell, It makes feel like I don’t have a life no more.

We have asked a question to our community “Living with Fibromyalgia and chronic illness“ that what does fibromyalgia feels like?. More than 500 hundred people have taken part in the discussion and share their thoughts with us. Here we The Fibromyalgia Resources have compiled few of their comments which every fibromyalgia patient can relate and agrees with. Click Here to Read what fibro feels like.

How to test yourself for fibromyalgia?

Fibromyalgia symptoms include widespread body pain, fatigue, poor sleep and mood problems. But all of these symptoms are common to many other conditions. And because fibromyalgia symptoms can occur alone or along with other conditions, it can take time to tease out which symptom is caused by what problem.

To make things even more confusing, fibromyalgia symptoms can come and go over time. That’s why it can take a long time to go from fibromyalgia symptoms to a fibromyalgia diagnosis. Only a doctor can accurately diagnose fibromyalgia, but there are certain steps you can take to evaluate your own probability of having fibromyalgia. Click Here to read more in details.

Causes of Fibromyalgia

There are several causes of fibromyalgia that have been pinpointed by the numerous studies that have been performed. These causes range from having a major infection at some point in their lives, to injuries that have occurred. However, more recently, studies are showcasing that emotional trauma could lead to developing fibromyalgia. Specifically speaking, PTSD or post traumatic stress disorder is being linked to those who are developing this illness.

Lots of research is been done on the causes of fibromyalgia, one of the them says that fibromyalgia is linked with emotional abuse and childhood trauma. Gaga, also believes cause of her fibromyalgia was sparked by being sexually assaulted when she was 19. Adding to this physical and emotional pressures of fame and touring worsen her medical conditin, said that her health is currently on an upswing. “It’s getting better every day, because now I have fantastic doctors who take care of me and are getting me show-ready,” she said.

There are lots of theories on the internet related to causes of fibromyalgia. All of the theories have some rationale behind and seems true to lots of audience. So here we have compiled the list of few of more acceptable theories of causes of fibromyalgia. We leave it up to you, you decide which one seems more true to you. In this article we highlighted the studies on blood vessels theory, Central Nervous system disorder theory, Spinal cord dysfunctioning theory and Trauma related research studies. Please give a read to all of them and let us know in the comment which one you think the most possible cause of your fibromyalgia

Few of the causes of fibromyalgia are listed below: (Click on them to read details on the topic)

How do you treat fibromyalgia?

A Range of medications and alternative treatments are available to help relieve pain and other fibromyalgia symptoms, but so far fibromyalgia has no cure. You can try these option to ease up your pain. Few of them are like AVACEN, balneotheraphy ,Herbal Treatments are also available for fibromyalgia and there are very effective. Click Here to read 15 low cost and easy fibromyalgia treatments.

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What You Should Know About a Person With Fibromyalgia

1. My pain

My pain is not your pain. It is not caused by inflammation. Taking your arthritis medication will not help me. I can not work my pain out or shake it off. It is not even a pain that stays put. Today it is in my shoulder, but tomorrow it may be in my foot or gone. My pain is believed to be caused by improper signals sent to the brain, possibly due to sleep disorders. It is not well understood, but it is real.

2. My fatigue

I am not merely tired. I am often in a severe state of exhaustion. I may want to participate in physical activities, but I can’t. Please do not take this personally. If you saw me shopping in the mall yesterday, but I can’t help you with yard work today, it isn’t because I don’t want to. I am, most likely, paying the price for stressing my muscles beyond their capability. Click Here to Read “10 Energy boost hacks for Fibro Fatigue”

3. My forgetfulness

Those of us who suffer from it call it fibrofog. I may not remember your name, but I do remember you. I may not remember what I promised to do for you, even though you told me just seconds ago. My problem has nothing to do with my age but may be related to sleep deprivation. I do not have a selective memory. On some days, I just don’t have any short-term memory at all.

4. My clumsiness

If I step on your toes or run into you five times in a crowd, I am not purposely targeting you. I do not have the muscle control for that. If you are behind me on the stairs, please be patient. These days, I take life and stairwells one step at a time.

5. My sensitivities –

I just can’t stand it! “It” could be any number of things: bright sunlight, loud or high-pitched noises, odors. FMS has been called the “aggravating everything disorder.” So don’t make me open the drapes or listen to your child scream. I really can’t stand it.

6. My intolerance

I can’t stand heat, either. Or humidity. If I am a man, I sweat…profusely. If I am a lady, I perspire. Both are equally embarrassing, so please don’t feel compelled to point this shortcoming out to me. I know. And don’t be surprised if I shake uncontrollably when it’s cold. I don’t tolerate cold, either. My internal thermostat is broken, and nobody knows how to fix it.

7. My depression

Yes, there are days when I would rather stay in bed or in the house or die. Severe, unrelenting pain can cause depression. Your sincere concern and understanding can pull me back from the brink. Your snide remarks can tip me over the edge.

8. My stress

My body does not handle stress well. If I have to give up my job, work part time, or handle my responsibilities from home, I’m not lazy. Everyday stresses make my symptoms worse and can incapacitate me completely.

9. My weight

I may be fat or I may be skinny. Either way, it is not by choice. My body is not your body. My appestat is broken, and nobody can tell me how to fix it.

10. My good days

If you see me smiling and functioning normally, don’t assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks or even months. In fact, the good days are what keep me going.

11. My uniqueness

Even those who suffer from FMS are not alike. That means I may not have all of the problems mentioned above. I do have pain above and below the waist and on both sides of my body which has lasted for a very long time. I may have migraines or hip pain or shoulder pain or knee pain, but I do not have exactly the same pain as anyone else.

12. My Disability

My disability is invisible but it still exists. Its same like you don’t see the air but it is present same goes with fibromyalgia, its exist , its real . Its not all in our heads, if it was then why wouldn’t i put something in my head which is more recognize like cancer etc. Lets put this Fibromyalgia disability sticker on your cars and spread fibro awareness. You can get this sticker from Here or click on the photo

Fibromyalgia Disability Car bumper sticker: Lets put this sticker on your car and spread the fibromyalgia awareness. As many people out there don’t consider our illness as being disable, because they don’t know it. – Click Here to get Yours Fibromyalgia Disability Sticker for you Car

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A Letter To all the Non-Believers of Fibromyalgia

For support, venting, discussion, Question Answers Join our friendly community “Living with Fibromyalgia and Chronic illness”

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References:

The connection between Fibromyalgia and PTSD by Dr. Muneeba via Fibromyalgiaresources.com
Fibromyalgia (FM) Patients Should Be Evaluated for Posttraumatic Stress Disorder (PTSD), Researchers Say via Fibromyalgia Resources
Fibromyalgia is Linked to Childhood Stress and Unprocessed Negative Emotions by M H Shahid via Fibromyalgiaresources.com
Abuse is the leading cause of fibromyalgia by Naomi Prex Arba, MD via Fibromyalgia Resources
What does fibromyalgia feel like by M H Shahid via Fibromyalgiaresources.com
What causes fibromyalgia and is there any cure? by Dr MG Rana,MD via Fibromyalgia Resources
Fibromyalgia is linked with Central Nervous system disorder by MG Rana,MD via FibromyalgiaResources.com
Fibromyalgia mystery finally solved. Research find main source of pain by M H Shahid via Fibromyalgia Resources
Fibromyalgia pain linked to spinal cord dys-function via Fibromyalgia Resources
History of early abuse as a predictor of treatment response in patients with fibromyalgia: a post-hoc analysis of a 12-week, randomized, double-blind, placebo-controlled trial of paroxetine controlled release. via NCBI, PubMed
Sexual and physical abuse in women with fibromyalgia syndrome. via NCBI, PubMed.
The prevalence of sexual abuse in women with fibromyalgia via Wiley Online Library. Ref

Fibromyalgia : Surviving An Invisible Misery – FR Report

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