Definition of Fibromyalgia by Fibro Patients

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Fibromyalgia is a great incentive to live for each day. If you wake up and can move, make the most of it. If you wake up and can’t move, then don’t. Get some rest, read a book, watch a movie. It might not be what you want, but it’s what you have to do for that day. Tomorrow is a new day and may well be different to yesterday. Be thankful that you have tomorrow because many people don’t. I know it’s difficult to feel that way when you’re in constant agony but there is always something good to in each day. 

We have asked a question from our Facebook Community “Living with Fibromyalgia” that What’s your definition of fibromyalgia ?. As we all know fibromyalgia is mysterious illness whose cause is still unknown. Everyone fibromyalgia pain is different which make it very complex. So we asked them to share with us their own definition of fibromyalgia, and how they define this invisible illness. The history of fibromyalgia traced back to 1904.

No words to describe how awful it is it’s a living hell, It makes feel like I don’t have a life no more. But we have compiled few of the pain description tell us by our members below.

Here is what people share with us:

1. Gloom, despair and agony on me; deep dark depression, excessive misery! For those that get it…humor is the best medicine! It keeps me positive and relaxes me so I can put the excruciating pain aside for a moment. -Carol 

2. Fibromyalgia; nobody could make this stuff up! – Karen

3. Fibromyalgia – a name that means nothing now a days. To many other conditions and diseases all just put under one name. – Hannah

4. Constant Charlie Horses all throughout you body anywhere at any time.

5. I call it Diablo Syndrome or the Devils disease. It’s hell sometimes. – Danielle

6. Feeling like you have the flu all the time. – Jill

7. In places you shouldn’t and wouldn’t normally get Charlie horses! – Vickie

8. Random migraines, discrimination, walking on lava and nails, nonstop stress, never sleeping to the point of being a zombie, extremely sweaty or frozen in seconds, spraining everything, being hit by a semi and thrown over an embankment while suffering from severe flu. Anger and resentment that my life’s hell 24/7. – Ambrose

9.  Fibromyalgia feels like someone threw you down a flight of stairs. -Laurie

10. Like a toothache all over. – Denise

11. Like having been ran over by a bus, sore very sore. – Kay

12. Just referencing pain – haven’t tried Lyrica. I felt relatively good in the morning. I spent the afternoon with friends. After getting back home it was like every muscle was contracting and I was extremely tired. – Linda

13. Pain from top your head to end toe nails n places u didn’t know exist, Crucial pain. – Patricia

14. It is like sitting on the Electric chair. – Stephanie

15. Pain from head to feet! Plus Fatigue! – Angela

16. Pain everywhere and fatigue feel I’ve been run over by a bus !!! – Marian

17. Every day different pains, moods, feelings…. different everything – Stef

18. Pain from head to toe inside your bones. – Paula

19. Pain through your entire body, exhaustion , dizziness , fibro-fog, rashes, worsening asthma , lung infections, IBS. – Joan

20. A fatigued, bruised body with a depressed mind. -Tina

 

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Let us know in the comments below that how would you describe your fibromyalgia Pain? Also Feel free to share if you find any description close to your heart.

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Featured Image Credits: Voices of Fibromyalgia

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